Tag: ALS
Pia Salming about the years that have passed since Börje Salming died of ALS
Photo: Bildbyrån Börje Salming died two years ago.Now his widow Pia talks about what it’s like to live with grief today.– Sometimes I have felt that it is completely useless…
The father of five, Torsten, has ALS – cannot carry his children
He is 40 years old and a father of five, and sick with the incurable disease ALS, which slowly breaks down the body.– I can no longer carry my children,…
For sick Frank, Bunnikers cycle Tour du ALS again: ‘I will go until I can’t anymore’
In a cinema in Utrecht, around 100 visitors watched a documentary about Frank’s Tour du ALS on Sunday. ‘For Jasper and Thomas’, is written in large letters in the last…
ALS patient could communicate for 7 years thanks to sensors in her head
The prosthesis consists of electrodes that are placed in the head and pick up signals. These signals are translated by a computer into commands, such as a mouse click. “Our…
A study by a Turkish scientist that excites the medical world! A promising development for dementia and ALS patients
Assoc. Prof. Dr. Selçuk Özdemir stated that it is estimated that around 60 thousand people in Germany and Turkey are affected by these diseases, which constitute a spectrum of neurodegenerative…
Bilthoven couple has Oscar ambitions with film about ALS disease
In addition to informing and helping families, the makers have great ambitions. “We want to win an Oscar.” And that is not unachievable, Luki and the Lights has already won…
Tears along the way, a smile at the top: team ALS patient Frank collects more than 4 tons in France
The Tour du ALS the talk of the day. This morning they were there early at the Anne Frank School, the school of Frank’s children, to encourage the people of…
ALS patient Frank and his brother conquer the Mont Ventoux on a tandem
“We have been working on it a lot,” says teacher Marleen. “But today is the most important day for us, right?” The children agree with this, although they sometimes find…
Frank raises 400,000 euros for the ALS foundation. Where does the money go?
Frank Bos from Bunnik and his team have already raised more than 390,000 euros for research into ALS. And while the sponsored tour still has to be cycled. On Thursday…
Lifting a glass of water is already difficult for Frank with ALS, but he still goes to climb Mont Ventoux
Every Monday Herman and Floor take care of Frank, because daily activities are no longer possible. “I have accepted that I need help,” says Frank. “That was of course a…