Rana Akgül (10), a French-born autistic patient living in Yalova, was diagnosed with a glomus tumor. Akgül, who was ignored by doctors in France because they did not know about it and doctors in many hospitals in Turkey said ‘he would remain on the table and be paralyzed’, regained his health with the successful surgery.
Cardiovascular Surgery Specialist Prof. made a statement on the subject. Dr. Halil Başel said, “Rana is a special child and a patient who has had a mass in his neck for about 5 years. At first it was thought to be a lymph node and it was followed from that perspective, but later they looked and found out that it was not a lymph node but a tumor. Our patient reached us from Yalova. I said there was no point in waiting. Because as you wait, it will grow larger and become more difficult to remove. I wish he had been treated earlier when he was little. Our doctors sometimes do not know what to do because this tumor is not seen very often, and they generally buy time so that we can follow the patient. But this is one of the biggest mistakes that can be made to the patient. We saw this in our daughter too. A small tumor becomes a bigger problem as it grows. It was difficult for us to remove it, and it is also difficult for the patient. We removed a 6.5 cm tumor from a 10-year-old child. “There could have been serious complications while removing it, but thank God we had no problems,” he said.
“WE HAVE REMOVED GLOMUS TUMOR IN A PATIENT WITH AUTISM FOR THE FIRST TIME IN THE WORLD”
Pointing out that surgery must be planned as soon as a diagnosis of glomus tumor is made, Başel said, “If surgery cannot be performed, a treatment must be sought. A second mistake they try to take a biopsy. It was offered to this patient as well, but I said don’t do such a thing. Because biopsy may require sudden bleeding and emergency surgery. Then things will get even more complicated. And this girl of ours is a special child. I scanned the literature. We were the first to remove a glomus tumor in a patient with autism. First in the world. I didn’t see anything else in my literature review. Being a child is also important. It is generally not seen at this age. We have had three patients with Rana so far. “In other words, in the literature, for the first time in the world, we removed a glomus tumor in a patient with autism, and it was a very large tumor,” he said.
“NONE OF THE RISKS TOLD US HAS HAPPENED”
Stating that they took his daughter Rana to their family doctor in France for the first time, father Orhan Akgül said, “They said there was nothing important there. Later, she had a seizure in Turkey. The doctors who saw that there was a mass in the MRI scan scared us a lot. They said our child might be paralyzed and would remain on the table. Then I started searching. Halil Bey appeared before us. We decided to perform surgery here, based on the comments made about him and the trust he gave. We bought our tickets and came. I came here a little worried and worried. Because I was worried about people’s reactions when I said Van. Thank God, he is in good health. None of the risks we were told about materialized. Nothing even happened to his voice. He was already saying certain words because he had autism. “Hopefully, after this surgery, I think he will be better at speaking as his vocal cords will be relaxed,” he said.
“HE GIVED OUR DAUGHTER BACK TO US THE SAME WAY HOW WE DELIVERED OUR DAUGHTER DURING THE SURGERY”
Mother Zeynep Akgül stated that her daughter had a seizure two months ago and said, “We went to many hospitals in Bursa, but she could not find what we expected. As parents, they scared us so much. Thank you, we reached Halil teacher. Halil teacher said come immediately. We came with a lot of anxiety, but there was no risk we were told. May God bless teacher Halil. He gave our daughter back to us the same way we handed her over during surgery. “May God keep teachers like him in our care,” he said.
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