Since the 2000s, screening for sickle cell disease, a genetic disease that causes bone deformation and pain, has been done in a targeted manner. In 2022, the High Authority for Health recommends the generalization of systematic screening, but the implementing decree has not yet been published. On the occasion of the world day dedicated to sickle cell disease, several associations present this June 19 a White Paper to Agnès Firmin Le Bodo, Minister Delegate to the Minister of Health and Prevention, to improve the management of this pathology. .
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Health: for better management of sickle cell disease, a rare disease that is progressing in France
