Dannia Shabbir is known as the only woman living with a chromosome translocation in the world. This disease is a rare genetic condition that means Dannia will always look four years old. When Dannia was born 19 years ago, doctors noticed she was smaller than average and had low body temperature and blood sugar. After her appearance, doctors who looked at her genetics determined that Dannia had an unusual genetic problem. This has only been seen in three boys so far. Dannia, who has many problems due to her very rare disease, is a very happy and harmonious young person despite all the negativities.
“I WANT TO CREAT AWARENESS ABOUT THE DISEASE”
Aleisha, 56, her mother, who lives in Fareham, England, said: “I want to raise more awareness about Dannia’s genetic makeup. That’s Dannia’s personality. That’s how God made her. She’s so adaptable, always so happy and loves people more than toys. Geneticist After she was born, she did full genetic testing and found that it was a chromosomal translocation on chromosome 20.
DOCTORS DON’T KNOW WHAT TO DO ABOUT THE PROGRESS OF THE DISEASE
“They said there were only 4 cases reported worldwide, all recorded cases were male. Previous cases with this disease have not survived. Doctors don’t know what to do about Dannia’s disease.”
FOREIGNERS ON THE STREET SHOOTING THEIR VIDEOS
The family is harassed by strangers on the street who don’t know about Dannia’s condition. Strangers are often videotaped and yelled at for using the handicapped compartments. Dannia’s wheelchair causes misunderstandings as it resembles a stroller in style. Aleisha said: “People don’t know what it is. That’s why they get angry when we use the disabled parts.”
They were kicked out of the airport
Aleisha shared that, during a plane trip to Morocco, although Dannia stated that she could not sit in the plane seat alone due to her genetic disorder, the flight attendants said that Dania should not sit on the lap because it would not be suitable for her age, and that they took them out at the airport.
HE LOVES TRAVELING
Despite everything, Dannia loves to travel and says her favorite place in the world is “swimming in a pool in Dubai”. “It does a lot better in hot weather than in cold weather,” Aleisha says. he adds. This is because Dania’s body temperature is one degree lower than ours.